#cdhsurvivor

It was a hospital day yesterday for my youngest son, our CDH survivor, this time at the respiratory department. Doctor said that his spine started to curve towards the right side considering his right

###It was another hospital appointment for Jansen. Screening Spirometry Test This time, it was for lung function test aka spirometer screening. This was his 3rd time doing it but he was still very nervous

If you were ever being sick on a sick bed for months, you would really appreciate the rays of sun. You would let all the rays absorbed into every cells and sinews within. If can, no matter how warm it

Last week and this week is my eldest school's assessment week, so I am like all-over-the-place helping him in his revision due to challenge in language. I was major in Malay language during my school time,

Yet again, another CDH baby gained his wings. We sobbed, we sent love to the parents and families. We were heartbroken. The baby fought so hard but while he was on ECMO, his brain bleed. 😭 Then, all started

It had been one year since we saw our our surgeon, to be precise, Jansen's surgeon, Prof Yik. There was no photo of him because hospital here did not encourage taking photos while the doctors and nurses

People say good thing takes time. Be it wine. Or extraction of oil. Like oil painting. Like baby in the womb. Or even a person going through a challenge. Photo is taken from unsplash.com, captured by Jonathan

We were thrilled for today's hospital visit for Jansen's regular respiratory follow up because instead of the usual 5-hour wait, today we waited only 1 hour. This helped to minimise some concerns in me

Please bear with me if you notice I have this presents-gifts-thread of blogs here, because I made it a goal to journal down all the blessings aka present my son, Jansen, recently had from his recent 6th

I am continuing the journal of Jansen's presents, because I think it is worth to be kept here in the blockchain. Forgive me if I bored you with all these presents' posting. One of my best friends (also

Not sure whether is this applicable here but I certainly know it will be approved as freewrite by Marianne as anything goes. Instead of writing about New Age, I want to type on my son's new age 😎. Because...

We are thankful It is Jansen's 6th birthday and I could never be thankful enough for his life. I could say it or type it over and over again, hopefully no one was bored reading it. Born with eadly congenital

First thing first, do we spell as fiber or fibre? We have been dealing with fibre intake for Jansen for years now, and had come to term that it has nothing to do with his fiber intake, but more towards

We love to celebrate life the life of a champion! Even more so on a life whom was once said to have no chance. Then, he was given 50-50 chance. And then, he is still with us today. Our CDH Survivor Warrior.

Trust me, I am not kidding... Was my response to one to my friends during his visit to our place one fine day somewhere Christmas last year. He could not believe my son was 5 years old. He thought he was

Past few days wasn't an easy one for me (us) at home. My youngest had his bouts of internal pain again (not going to elaborate anymore but yeah, it was post-surgery complications which would be there unless

Hi dear Hivers, How is everyone? We know people are staying home, finding the new norm, adapting to the new lifestyle while the earth is healing. Somehow, we have to stay positive as much as we can, find

This was yesterday's homeschooling activities but I didn't get to post as I was abit mentally emotionally drained after helping my youngest with his writing specifically in numbers. We noticed sometime

... happily on trampoline and he did mention once "how nice if we have one at home, then I can jump whole day". And he got to do it during his Occupational Therapy session at hospital the other

... than the consulting time. According to Professor, Jansen seems to be improving from his previous state. And we are hoping as he grows older, more complication will subside. Met with dietician too since