#spinabifida

Mamá especial

So. It's been about 7 months since I'd last posted. The hiatus was in part the things Steemit was going through at the time, with some people staking out their various territories, and frankly, it was

This Sunday my team The Bad Samaritan is organizing airsoft game to raise fund for one little guy . Check it down bellow . Luka Matic is a pupil of the sixth grade of the Sinj Primary School of Marka Marulić.

Evanna woke from nap with a fever, so she's officially got whatever's going through the family. Wife's currently on phone with on-call doc to see what we should do and when to consider taking her to Children's

Where we left offThe previous post in this series left us just after the first of her surgeries, at this point...a very low point for me, since mom was still recovering two floors away, and it was just

I've written here on Steemit a bit about my youngest, Evanna, and the challenges she has faced and will face in the future. So I thought I'd bring her whole story to this platform. The beginningHer story

This is my 16-month old, Evanna. She was born with spina bifida, and has little sensation below her knees, so will be using a wheelchair at least part of the time as she gets older. Despite having introduced

The appointments Yesterday's visit included appointments with an audiologist, an orthopedic surgeon, and an orthotist. Audiologist Audiologist appointment didn't go well because she did not like the

For those that have followed some of my posts about my now almost 16-month old, got some great news today from Seattle Children's Hospital. For those not following, check through previous posts and/or

This is my youngest, Evanna. I've written about her and her medical issues in previous posts. But this post is about naptime, when right before falling asleep, she draws close. Really close, as if to say,

My youngest in last set of casts to correct her clubfoot...and her prior to treatment, about a year ago. We've had a lot of complications, but finally almost there! Created with Steepshot View in the web

My youngest, Evanna. Despite all the challenges, the hospital stays, the surgeries, and the therapies, she is such a happy child so much of the time! Created with Steepshot View in the web app

Practice before her first wheelchair, likely sometime this year. Created with Steepshot View in the web app

The past couple years have been revolutionary for our family. In some ways bad, but mostly good; definitely hard, but incredibly blessed. We certainly have different priorities, even though ours were already

From my daughter's site...one of her diagnoses. Spina bifida is a type of birth defect called a neural tube defect. It occurs at the point when the neural tube (which forms the spinal column and spinal

This is a very recent picture of Evanna, clearly not the worst-case scenario so many medical professionals inform parents of when initially diagnosed.

My name is Scott, currently hailing from Olympia, WA. Joined Steem in the hopes it will develop into a non-censored alternative to Twitter and other social media. I've reduced my social media presence