#duchennemusculardystrophy

This time around, we founf a playground that has a lot going for it from an accessible point of view. There's a Liberty swing whcih can take a wheelchair, a ramp on the play equipment, and a lot of other

This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible features. We had high hopes! ▶️ 3Speak

My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible for people who use mobility aids.

This video was taken a few years before we received my son's Duchenne muscular dystrophy diagnosis. I remember, back then, thinking that he had really good calf muscles. Didn't know at the time, that

A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise awareness of Duchenne muscular dystrophy

Resilience is, in general terms, the ability to cope with stressful events without becoming overwhelmed by them. I know a little boy, who this week, went to the dentist to have a baby tooth extracted because

As I continue preparing for the upcoming awareness/fund raising event, I've been completing early morning walks in the hope that I'll be conditioned enough to finish the 79 kilometres. While I've alwaye

We knew that dealing with a life-limiting condition would be difficult, but each new development is a kick in the guts.

Sometimes a change just won’t cut it - a holiday is actually what is needed.

This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our Sons, a charity that is seeking to find a cure for Duchenne muscular

... in it's most used context, funny does tend to sit with the people watching, but now I wonder where the truth lies.

Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should never, ever, give up, and for just as long

Launching 15.02.2024 ▶️ 3Speak

In a similar philosophy to ownership, perhaps being aware is nine-tenths of the issue. Is awareness all that's needed?

Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief. In my experience, I didn’t track how

I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever experienced it in its truest form. I

Unfortunately for long term steroid users, bones can quickly become weak, and for a child with Duchenne muscular destrophy, this can easily lead to breakages. For a child with DMD, not walking, or using

She's learning heartache and sadness, but she's also learning empathy and how to genuinely care.

This is the third post in this series, please read the first two posts before continuing. You can find Part One here: 10,372 - Part One, and Part Two here: 10,372 - Part Two. We departed the doctor's office

This is the second post in this series, please read the first post before continuing. You can find it here: 10,372 - Part One. Our frustrations continued to mount at not being able to nail down what was