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latest #duchennemusculardystrophy created topics | Ecency
d-a-d
FreeCompliments
2025-03-01 08:54
Accessible Playground Review 2 - A Much Better Option
This time around, we founf a playground that has a lot going for it from an accessible point of view. There's a Liberty swing whcih can take a wheelchair, a ramp on the play equipment, and a lot of other
$ 1.751
80
4
d-a-d
FreeCompliments
2025-02-07 13:24
Accessible Playground Review Number 2 - We Were Duped
This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible features. We had high hopes! ▶️ 3Speak
$ 0.901
47
2
d-a-d
FreeCompliments
2025-01-24 10:07
2025 Goals - Review Playgrounds for Accessibility
My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible for people who use mobility aids.
d-a-d
FreeCompliments
2025-01-16 22:58
Before We Received the Diagnosis
This video was taken a few years before we received my son's Duchenne muscular dystrophy diagnosis. I remember, back then, thinking that he had really good calf muscles. Didn't know at the time, that
dovycola
Threespeak
2026-07-18 17:35
Promoted
I Sang "Reflection" Live at Theater Dakota!
Hey everyone! I'm Dovydas, and I want to share something really special with you. Last week I got to perform at the Ook van Jou Summer Festival at Theater Dakota in The Hague — and I sang
d-a-d
FreeCompliments
2024-10-01 23:39
Awareness Raising Walk 2024
A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise awareness of Duchenne muscular dystrophy
d-a-d
FreeCompliments
2024-08-17 06:09
Resilience - A (Very) Short Story
Resilience is, in general terms, the ability to cope with stressful events without becoming overwhelmed by them. I know a little boy, who this week, went to the dentist to have a baby tooth extracted because
d-a-d
Threespeak
2024-07-11 23:58
You Can’t Stop
As I continue preparing for the upcoming awareness/fund raising event, I've been completing early morning walks in the hope that I'll be conditioned enough to finish the 79 kilometres. While I've alwaye
d-a-d
FreeCompliments
2024-04-27 00:37
Blindsided… A Bit
We knew that dealing with a life-limiting condition would be difficult, but each new development is a kick in the guts.
koenau
TravelFeed
2026-07-17 16:35
Promoted
Bats Hotel: Echoes of the Elites House
Once a premier luxury hotel catering to the "most exacting tastes" of the Roaring Twenties, and later an exclusive GDR h
d-a-d
FreeCompliments
2024-04-17 11:42
Birthday Trip
Sometimes a change just won’t cut it - a holiday is actually what is needed.
d-a-d
FreeCompliments
2024-03-06 09:14
Save Our Sons and Walk For Duchenne
This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our Sons, a charity that is seeking to find a cure for Duchenne muscular
d-a-d
Reflections
2024-02-27 06:12
The Eye of the Beholder
... in it's most used context, funny does tend to sit with the people watching, but now I wonder where the truth lies.
d-a-d
FreeCompliments
2024-02-23 10:59
Whatever You Have To Do, Find An Excuse To Win
Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should never, ever, give up, and for just as long
tydynrain
We Are Alive Tribe
2026-07-16 22:10
Promoted
I Am #AliveAndThriving Today! || #IAmAliveChallenge || Daily Off-Grid Jungle Journal Entry: Day #1457 - Commitment and Mutual Benefit - GaiaYoga Gardens, Lower Puna, Far East Big Island, Hawai'i - Wednesday, July 2026
I live naked and barefooted, very close to Earth and Nature, in an 18-acre, off-grid, clothing-optional, food-forest intentional community (GaiaYoga Gardens), way out in the jungles of Lower Puna, far
d-a-d
FreeCompliments
2024-02-12 09:17
Coming soon
Launching 15.02.2024 ▶️ 3Speak
d-a-d
FreeCompliments
2024-01-26 21:47
The Invisibility from Disability
In a similar philosophy to ownership, perhaps being aware is nine-tenths of the issue. Is awareness all that's needed?
d-a-d
FreeCompliments
2024-01-14 05:02
Good Grief - Learning About The Stages of Grief
Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief. In my experience, I didn’t track how
d-a-d
FreeCompliments
2023-12-31 22:49
Good Grief - An Introduction
I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever experienced it in its truest form. I
digi-me
StreetArt
2026-07-21 11:16
Promoted
STREET ART #263 – A day in the city of Kristiansand, Norway
STREET ART #258 – A day in the city of Kristiansand, Norway
This summer I have noticed a couple of new murals. A few days ago I went to town to have a look at them. In this post, I have chosen to add beautiful sandsculptures as well, even they have nothing to do
d-a-d
The City of Neoxian
2023-12-27 06:20
Anyone Esle Got Kids Who've Needed Infusions?
Unfortunately for long term steroid users, bones can quickly become weak, and for a child with Duchenne muscular destrophy, this can easily lead to breakages. For a child with DMD, not walking, or using
d-a-d
FreeCompliments
2023-12-18 23:39
Life's Crucible
She's learning heartache and sadness, but she's also learning empathy and how to genuinely care.
d-a-d
FreeCompliments
2023-11-27 23:06
10,372 - Part Three
This is the third post in this series, please read the first two posts before continuing. You can find Part One here: 10,372 - Part One, and Part Two here: 10,372 - Part Two. We departed the doctor's office
d-a-d
FreeCompliments
2023-11-19 02:37
10, 372 - Part Two
This is the second post in this series, please read the first post before continuing. You can find it here: 10,372 - Part One. Our frustrations continued to mount at not being able to nail down what was
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