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latest #duchennemusculardystrophy created topics | Ecency
d-a-d
FreeCompliments
2025-03-01 08:54
Accessible Playground Review 2 - A Much Better Option
This time around, we founf a playground that has a lot going for it from an accessible point of view. There's a Liberty swing whcih can take a wheelchair, a ramp on the play equipment, and a lot of other
$ 1.751
80
4
d-a-d
FreeCompliments
2025-02-07 13:24
Accessible Playground Review Number 2 - We Were Duped
This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible features. We had high hopes! ▶️ 3Speak
$ 0.901
47
2
d-a-d
FreeCompliments
2025-01-24 10:07
2025 Goals - Review Playgrounds for Accessibility
My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible for people who use mobility aids.
d-a-d
FreeCompliments
2025-01-16 22:58
Before We Received the Diagnosis
This video was taken a few years before we received my son's Duchenne muscular dystrophy diagnosis. I remember, back then, thinking that he had really good calf muscles. Didn't know at the time, that
nectarbytes
Mildly Infuriating
2026-08-03 00:10
Promoted
August Contest for The Mildly Infuriating Community!
August has just started and it's time for a contest! The goal of this contest is to help bring exposure to this new community! What better way is there to have fun and get people talking about it than
d-a-d
FreeCompliments
2024-10-01 23:39
Awareness Raising Walk 2024
A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise awareness of Duchenne muscular dystrophy
d-a-d
FreeCompliments
2024-08-17 06:09
Resilience - A (Very) Short Story
Resilience is, in general terms, the ability to cope with stressful events without becoming overwhelmed by them. I know a little boy, who this week, went to the dentist to have a baby tooth extracted because
d-a-d
Threespeak
2024-07-11 23:58
You Can’t Stop
As I continue preparing for the upcoming awareness/fund raising event, I've been completing early morning walks in the hope that I'll be conditioned enough to finish the 79 kilometres. While I've alwaye
d-a-d
FreeCompliments
2024-04-27 00:37
Blindsided… A Bit
We knew that dealing with a life-limiting condition would be difficult, but each new development is a kick in the guts.
idea-make-rich
Shadow Hunters
2026-08-10 14:23
Published via Ecency
Promoted
👉 Guess The Shadow Contest - Round 109
Namaste🙏, Shadow Hunters family! 🎺 Announcement 🎺! Guess The Shadow Contest Round-108 is now closed. Winners will be announced and rewards will be given within the next 24 hours. Guess The Shadow Contest
d-a-d
FreeCompliments
2024-04-17 11:42
Birthday Trip
Sometimes a change just won’t cut it - a holiday is actually what is needed.
d-a-d
FreeCompliments
2024-03-06 09:14
Save Our Sons and Walk For Duchenne
This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our Sons, a charity that is seeking to find a cure for Duchenne muscular
d-a-d
Reflections
2024-02-27 06:12
The Eye of the Beholder
... in it's most used context, funny does tend to sit with the people watching, but now I wonder where the truth lies.
d-a-d
FreeCompliments
2024-02-23 10:59
Whatever You Have To Do, Find An Excuse To Win
Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should never, ever, give up, and for just as long
sacra97
Freewriters
2026-08-05 07:34
Promoted
Mensaje diario de 5 minutos- ¡Agujero en la trama! / Daily 5 minute message- Plot hole!- 4 agosto 2026
Me encantan las tramas inesperadas, esa que solucionan bien algo en la vida. Hay películas y series que a veces me sorprenden son aquellas que se le olvidan contarnos un proceso que esta sucediendo detrás
d-a-d
FreeCompliments
2024-02-12 09:17
Coming soon
Launching 15.02.2024 ▶️ 3Speak
d-a-d
FreeCompliments
2024-01-26 21:47
The Invisibility from Disability
In a similar philosophy to ownership, perhaps being aware is nine-tenths of the issue. Is awareness all that's needed?
d-a-d
FreeCompliments
2024-01-14 05:02
Good Grief - Learning About The Stages of Grief
Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief. In my experience, I didn’t track how
d-a-d
FreeCompliments
2023-12-31 22:49
Good Grief - An Introduction
I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever experienced it in its truest form. I
yelimarin
Cinnamon Cup Coffee
2026-08-13 00:04
Published via Ecency
Promoted
An afternoon over coffee, an unexpected “story time,” and a bittersweet ending
This is a coffee date with a story. Well, it all started when a friend and colleague asked me to meet up so she could vent a little about a family situation she
d-a-d
The City of Neoxian
2023-12-27 06:20
Anyone Esle Got Kids Who've Needed Infusions?
Unfortunately for long term steroid users, bones can quickly become weak, and for a child with Duchenne muscular destrophy, this can easily lead to breakages. For a child with DMD, not walking, or using
d-a-d
FreeCompliments
2023-12-18 23:39
Life's Crucible
She's learning heartache and sadness, but she's also learning empathy and how to genuinely care.
d-a-d
FreeCompliments
2023-11-27 23:06
10,372 - Part Three
This is the third post in this series, please read the first two posts before continuing. You can find Part One here: 10,372 - Part One, and Part Two here: 10,372 - Part Two. We departed the doctor's office
d-a-d
FreeCompliments
2023-11-19 02:37
10, 372 - Part Two
This is the second post in this series, please read the first post before continuing. You can find it here: 10,372 - Part One. Our frustrations continued to mount at not being able to nail down what was
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