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latest #duchenneawareness created topics | Ecency
d-a-d
FreeCompliments
2025-02-07 13:24
Accessible Playground Review Number 2 - We Were Duped
This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible features. We had high hopes! ▶️ 3Speak
$ 0.901
47
2
d-a-d
FreeCompliments
2025-01-27 09:01
Playground Review - Inclusive or Not? Review 1
If you've followed my account at all, you'll know that I'm all about helping people to understand Duchenne muscular dystrophy, a rare genetic condition that my son has. This year (and well into the future),
$ 4.716
43
1
d-a-d
FreeCompliments
2025-01-24 10:07
2025 Goals - Review Playgrounds for Accessibility
My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible for people who use mobility aids.
d-a-d
FreeCompliments
2024-10-01 23:39
Awareness Raising Walk 2024
A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise awareness of Duchenne muscular dystrophy
papilloncharity
Photography Lovers
2026-08-07 11:14
Promoted
Nature's love lesson.
A first for us to see this loving Cape White Eye couple (Zosterops virens) in action. And my first thought was that I must try this with my wife when we get back home. So, as soon as we got back, I waited
d-a-d
FreeCompliments
2024-07-11 07:33
You. Can’t. Stop.
It’s been some time since my last post where I outlined my plans to run an awareness raiser so that more people can learn about Duchenne muscular dystrophy (DMD). Since that post, I’ve been busy getting
d-a-d
Proof of Brain
2024-06-07 22:51
Because I Can
🌟 Join Me in Making a Difference! 🌟 That’s right! You haven’t watched wrong! I’m going to be walking 79km on the 7th of September with the intention of raising awareness of Duchenne muscular dystrophy
d-a-d
FreeCompliments
2024-06-07 21:06
Because I Can...
A couple of posts ago, I wrote about my son's recent school camp and how it was noticeably more difficult for him this year, than last year. As I concluded that post, I wrote the following final paragraph:
d-a-d
FreeCompliments
2024-04-27 00:37
Blindsided… A Bit
We knew that dealing with a life-limiting condition would be difficult, but each new development is a kick in the guts.
stresskiller
Black And White
2026-08-10 07:08
Published via Ecency
Promoted
a Monochrome impression of our visit to "Kasteel Groeneveld "
Last Friday we went to visit Kasteel Groeneveld , a building dating back to the 1720 here in Holland. You can find more detailed info on their website : It has a lovely park for a walk , if the weather
d-a-d
FreeCompliments
2024-04-17 11:42
Birthday Trip
Sometimes a change just won’t cut it - a holiday is actually what is needed.
d-a-d
FreeCompliments
2024-03-31 07:47
Often Unsure
That's the whole point of the wheelchair, to provide freedom when his legs cannot offer this anymore.
d-a-d
FreeCompliments
2024-03-21 04:09
I Don't Think We Can Be Friends
After trialling a modified vehicle and electric wheelchair for my son, I won't be friends with either appliance.
d-a-d
FreeCompliments
2024-03-16 05:13
I'm Not Sure I Can
I don't want to watch this condition and what it does anymore. It's time to do something about it. Let's end DMD.
acgalarza
Town Square
2026-08-10 10:18
Published via Ecency
Promoted
When Everything in You Wants to Quit
Do you lose your motivation the moment things get difficult and find yourself distracted by easier tasks? Many people do. When the pressure hits, our brain naturally looks for the path of least resistance,
d-a-d
FreeCompliments
2024-03-10 08:02
Published via Ecency
Everything Is Different
School camps are a time for fun and adventure, but what happens when you need help to do everyday tasks most people take for granted?
d-a-d
FreeCompliments
2024-03-06 09:14
Save Our Sons and Walk For Duchenne
This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our Sons, a charity that is seeking to find a cure for Duchenne muscular
d-a-d
Reflections
2024-02-27 06:12
The Eye of the Beholder
... in it's most used context, funny does tend to sit with the people watching, but now I wonder where the truth lies.
d-a-d
FreeCompliments
2024-02-23 10:59
Whatever You Have To Do, Find An Excuse To Win
Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should never, ever, give up, and for just as long
darth-azrael
photography
2026-08-10 23:45
Published via Ecency
Promoted
Vintage Photos - Lot 6 (389-392)
The photos in this set were all taken in the 1970s.
d-a-d
FreeCompliments
2024-02-12 09:17
Coming soon
Launching 15.02.2024 ▶️ 3Speak
d-a-d
FreeCompliments
2024-01-26 21:47
The Invisibility from Disability
In a similar philosophy to ownership, perhaps being aware is nine-tenths of the issue. Is awareness all that's needed?
d-a-d
FreeCompliments
2024-01-14 05:02
Good Grief - Learning About The Stages of Grief
Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief. In my experience, I didn’t track how
d-a-d
FreeCompliments
2023-12-31 22:49
Good Grief - An Introduction
I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever experienced it in its truest form. I
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