#duchenneawareness

This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible features. We had high hopes! ▶️ 3Speak

If you've followed my account at all, you'll know that I'm all about helping people to understand Duchenne muscular dystrophy, a rare genetic condition that my son has. This year (and well into the future),

My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible for people who use mobility aids.

A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise awareness of Duchenne muscular dystrophy

It’s been some time since my last post where I outlined my plans to run an awareness raiser so that more people can learn about Duchenne muscular dystrophy (DMD). Since that post, I’ve been busy getting

🌟 Join Me in Making a Difference! 🌟 That’s right! You haven’t watched wrong! I’m going to be walking 79km on the 7th of September with the intention of raising awareness of Duchenne muscular dystrophy

A couple of posts ago, I wrote about my son's recent school camp and how it was noticeably more difficult for him this year, than last year. As I concluded that post, I wrote the following final paragraph:

We knew that dealing with a life-limiting condition would be difficult, but each new development is a kick in the guts.

Sometimes a change just won’t cut it - a holiday is actually what is needed.

That's the whole point of the wheelchair, to provide freedom when his legs cannot offer this anymore.

After trialling a modified vehicle and electric wheelchair for my son, I won't be friends with either appliance.

I don't want to watch this condition and what it does anymore. It's time to do something about it. Let's end DMD.

School camps are a time for fun and adventure, but what happens when you need help to do everyday tasks most people take for granted?

This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our Sons, a charity that is seeking to find a cure for Duchenne muscular

... in it's most used context, funny does tend to sit with the people watching, but now I wonder where the truth lies.

Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm believer that we should never, ever, give up, and for just as long

Launching 15.02.2024 ▶️ 3Speak

In a similar philosophy to ownership, perhaps being aware is nine-tenths of the issue. Is awareness all that's needed?

Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief. In my experience, I didn’t track how

I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever experienced it in its truest form. I