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iamjadeline
Liketu
3y
Follow-Up with Surgical Team // Update on Jansen CDH survivor
Follow-Up with Surgical Team // Update on Jansen CDH survivor
Today's hospital appointment lasted us in total 5 hours in the morning! Phew! Finally, we successfully met up with the surgical team. It was a usual follow-up but had been postponed since January due to
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9
usertang
kr
7y
여덟 번째 기록
여덟 번째 기록
내 인생 최고의 돈까스! 명란+돈까스+할라피뇨 소스+ 들기름에 무친 숙주 최고의 조합이당 🤭💦 세상 사람들 모두가 맛을 봤으면 좋겠당 🥳
4
9
iamjadeline
congenital
8y
Back to square one 1⃣🙄🤨😥
Back to square one 1⃣🙄🤨😥
Life of a tubie child is not easy. You just don't know what is going on internally. Some said it is the complication of fundoplication surgery. Some said it is reflux. We just can't be too sure. The most
iamjadeline
health
8y
My Petite Son
My Petite Son
Doctor said he is so small and definitely "poor weight gain". He will be 4 years old and 2 weeks time and he weighs 10.55kg with height 91.4cm. Mummy and daddy have tried our best yet there is
iamjadeline
life
8y
Trying to smile in the storm
Trying to smile in the storm
It's heart-wrenching to see son's condition with chest infection. Needing nebuliser, suction & on the strongest antibiotic. Hopefully he can pull through this ordeal, although I'm worried due to him
iamjadeline
steepshot
8y
Impromptu trip to ER
Impromptu trip to ER
After few days of bouts of fever and cough, we headed off to ER to have our son checked. Due to him a CDH-er, we could not afford any risk. So the main culprit is bacterial infection which caused tonsilitis.
iamjadeline
life
8y
My CDH survivor is back to normal mode now! Yay!
My CDH survivor is back to normal mode now! Yay!
After feeling very uncomfortable for past 5 days, almost 24 hours lying down and of course all feed were done via stomach-tube, at last he gradually felt better. And starts to eat too. Indeed is THE FIGHT
iamjadeline
life
9y
Jansen opened his eyes at ICU!
Jansen opened his eyes at ICU!
We were told not to record video in the ICU. But we were unsure of the future. So the moment Jansen opened his eyes, we could not help but to video....secretly... ;) ▶️ DTube ▶️ IPFS
iamjadeline
cdh
9y
2-in-1 surgeries when Jansen was 3-months-old
2-in-1 surgeries when Jansen was 3-months-old
After his diaphragmatic hernia's surgery, he continued to rely on different types of breathing machine and at 2-week-old, he started being fed mummy's milk via NG-tube (naso-gastric tube meaning nose to
iamjadeline
life
9y
Jansen's 1st surgery at 6-day old: To fix diaphragm hernia
Jansen's 1st surgery at 6-day old: To fix diaphragm hernia
This was the 1st surgery performed on Jansen that left me crying my eyes out and there was no faith and no hope found in me. It was the moment I gotto prepare myself to lose him. Merely due to the fact
iamjadeline
life
9y
From "stomach-feed" to "mouth-eat"
From "stomach-feed" to "mouth-eat"
We started tube-weaning Jansen since 1st December this year and oh my the journey is tougher than I thought it is. (If you want to know more about what happened to Jansen, my 2nd son, I posted about it
iamjadeline
life
9y
New 'earring' for his stomach has arrived!
New 'earring' for his stomach has arrived!
Today is my husband's birthday, but instead of him receiving present, he received a parcel today which is'present' sponsored by Jansen's grandma for Jansen! Thank you to darlingi! Thank you to Jansen's
iamjadeline
dtube
9y
Changing new Mickey feeding button
Changing new Mickey feeding button
This video is to show how I take out the old Mickey feeding button and insert a new one into Jansen's stoma (stomach hole). ▶️ DTube ▶️ IPFS
iamjadeline
life
9y
Tube-feed journey: The worst nightmare
Tube-feed journey: The worst nightmare
During tube-feeding yesterday morning, we heard a gentle "thud" then stared in disbelief. "Oh my, Jansen's feeding button has dropped out!!!" "Where? Where? No more button at my
iamjadeline
food
9y
What does a tubie (tube-fed human) eat?
What does a tubie (tube-fed human) eat?
Usually the easiest way to feed my son via g-tube is formula milk specially designed for tubie. It is always being advertised that the formula contains everything that your child needs for balanced growth.
iamjadeline
life
9y
Ever sleep and eat at the same?
Ever sleep and eat at the same?
Many don't get to experience eating and sleeping at the same time. But my son has this opportunity as he is tube-fed and got to be fed overnight due to insufficient calories throughout the day. He has
iamjadeline
introducemyself
9y
Big HELLO to all Steemians! This is a long intro, so thank you in advance for time & love 😍
Big HELLO to all Steemians! This is a long intro, so thank you in advance for time & love 😍
So back in July 2014, at 30 weeks of pregnancy of my 2nd son Jansen, my husband and I were told that our son has right-sided CDH. Just three alphabets "CDH", congenital diaphragmatic hernia,

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