Due to this hereditary genetic disorder, the person is born without a key protein in the blood coagulation. Therefore, when a patient is cut, it can bleed profusely, the most serious hemorrhages are those that occur in joints, brain, eye, tongue, throat, kidneys, digestive, genital, nasal hemorrhages, etc. And when he only hits himself, painful bruises immediately form. For this reason, many of them are prohibited from practicing contact sports.
The majority are men and inherit the disease from their mother, who almost always carries it, but almost never develops it.
Most cases are evident when children start to walk and stumble. This disease has no cure, but treatment with two types of therapies. One focused on controlling the coagulation at the moment of the blow, for which the patient must take the coagulation factor that does not produce his organism. The other, the most used, is to apply two to three times a week the factor to prevent bleeding in case of accidents
Help your child:
It is important to consider the child's own way of working. It is about helping and accompanying the child in his journey, allowing him to direct his research. Therefore, we will try to provide the child with the answers, but also taking into account that, as with any traumatic situation, it is preferable to leave a margin in the explanations so that the child can continue asking as far as he wants to know: in short, as far as possible put up with.
*Take the time to teach your child the signs and symptoms of a hemorrhage and the problems that may occur when concealing or not treating it promptly. Tell him that some of the ways in which a joint or muscle hemorrhage feels are: heat, burning, swelling, reduced mobility, feeling of bubbles.
*Your child should know that if he feels pain, he should stop the activity immediately and notify an adult. And if you have pain in a particular joint or muscle, you can resort to rest, ice, compresses and elevate the affected limb. Before going to the doctor, have your child prepare one or two questions to do himself.
*After the visit, have him write down his impressions.
Do not judge you because of You.
Educate and prepare to face this great challenge.
Congratulations to all those Warriors who are struggling with this disease
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