I've been arriving for my dialysis so much lighter than I expect because today I just weighted with only 2.1 Kilos of extra water so that is what I told my nurses to take out from my body today at dialysis.
The way I would compute on how much water that should be taken is I would add about half a Kilo of weight into what supposed to be taken out. It is because I am drinking about 300 mL of fluids that is coming from my energy drink.
If my blood pressure would get low then I will still have about 250 mL of fluids to drink and it will still be within the part of my allotted allowance to drink during my session.
Usually the nurses would tell me to drink some sprite so that my blood pressure would go up with at least in the 120 systolic range, they are not allowing me to go home if my blood pressure is 110 systolic but if the other head nurse is present I will be allowed.
It is funny when I was still able to walk I would really yank the foot lever of my dialysis chair to set my feet down so that I can already scoot out from the dialysis after the nurse had finished putting bandage on my arm.
But now I cannot do that anymore and I am at the mercy of my nurses if they will let me go or hold me because of my blood pressure even though I am still feeling fine already.
Well it is that hard to be a disabled person, you will go where you do not want to go and cannot go to places you wanted especially in my case with my hideous appearance wof my face, I will just be a thing of curiosities for all people. So I just am preferring to stay at home and suffer the heat or cold of the day and night plus being spent with money that I cannot enjoy.