Huge shout out to 
The community has been overwhelminginly supportive and I wanted to make this quick post to say thank you. I really apreciate it.
I am in a major crash right now, so please be patient if I am not responding to your comments right away. The specialist I saw about my foot/ankle issue did what they always do and now I get to play "specialist ping pong" and no treatments for nerve pain while I wait. On my best days I am not well enough for specialist ping-pong and all the testing that involves.
Keep in mind I am very ill and I almost fainted in the exam room because they were an hour late .I cant be upright for that long due to severe POTS . This happens all the time at doctor's offices even when I inform them ahead of time about my condition. The "syncope hangover"(PEM/PESE) is no fun either.
The specialist took more time talking to my husband, who is not a patient than me (he was not asking my husband questions about my condition either). This is not an exaggeration. Seriously what do women need to to be taken seriously by the medical profession?
I am sharing this because most people without chronic illnesses have no idea how impossible the system is to navigate when you are chronically ill.Sharing my story or bits of it help validate other people's experiences even though the subject itself can be uncomfortable.
Anyway please know that I appreciate all the support from the bottom of my heart. It fills me with joy to see how many folks are supporting this project.
I look forward to interacting with you more once I am able. Please know you are in my heart/mind and I am thinking about the outpour of support.
鉂わ笍馃