So. I am stopping Rapamycin because it has not helped my quality of life. In fact it seems to be worsening it at least in terms of energy/ability. It helps with one type of pain but that doesn't matter

Here are a few things to never say to a disabled/chronically ill person (unless for whatever reason they have specifically told you saying these things is helpful to them in some way) These are things

Here are a few things to never say to a disabled/chronically ill person (unless for whatever reason they have specifically told you saying these things is helpful to them in some way) These are things

The past month or so I have noticed a change in my hair and skin. I will do my best to give my thoughts, details on supplemtns etc but please note i am not a medical doctor or health care professionals.

Trigger warning: I will be talking about gaslighting and emotion/medical abuse and neglect in this post. If these topics are triggering for you please be cautioned. I believe this is important to talk

This will be a quick update. I am very sick, I just started to feel better and was able to eat and then this morning got very sick. I don't know if it is related to taking the second dose yesterday or

Most f my posts are pretty serious but thought I'd share a story from my time as a standardized patient. Though I am too disabled to work now, I did manage to work at least part time for most of my life

It's week 4 and my dosage will be increased this week (just waiting for the shipment). Normally I take it with breakfast but I am having issues eating these past few days. This is not related to the medicine

This will be a short update because I am still in a crash and barely have the energy to type. This is pretty "normal" for me after acute infection/illness. I usually crash for weeks/months after.

This will be a short update because I am still in a crash and barely have the energy to type. This is pretty "normal" for me after acute infection/illness. I usually crash for weeks/months after.

It's been a very rough few weeks with the flooding then needing multiple major repairs and of course the lovely mold exposure. I am pretty sure the mold/chemicals also contributed to one of our guinea

I'm really sick. Before I get into it I want to state very clearly I do not believe this has anything to do with Rapamycin. If anything I think rapamycin's anti fungal properties would help in this situation.

This post will be cross posted to Spoonies Unite soon. This month has been rough for me, but I am ending it with an new medication. An actual treatment. I had to go online to a practice that focuses on

This is a once weekly medications fr me. So far so good After a coupe of hours of taking it I started to get a little nauseous. This is pretty typical for me -it seems just about everything upsets my stomach.

I stated in previous posts that this month would be a combo November and December's donation because Open Medicine Foundation has a giving event where donations are triple for the month of November. donation

This post will be cross posted to Spoonies Unite soon. This month has been rough for me, but I am ending it with an new medication. An actual treatment. I had to go online to a practice that focuses on

image source This is a fundraising account. Proceeds from posts and curation will got to charities supporting research, education and outreach for people with chronic illnesses. Points with a purpose refers

Hey spoonies. Here's an update from me. I was doing really well for about a month but the last week I have seen huge setbacks and am in a major crash. It all started with the toilet mess. Luckily we do

This post will be cross posted in Spoonies Unite shortly OMF has a donation incentive this month. They have a backer that will triple donations made in November. I have decided to combine November/December's

I didn't want to curse it as my illnesses often wax and wane and are quite unpredictable. However it has been probably about 6-8 weeks since I started my new supplement stack and I have consistently been