It's been a very rough few weeks with the flooding then needing multiple major repairs and of course the lovely mold exposure. I am pretty sure the mold/chemicals also contributed to one of our guinea pig's sudden illness.
I am happy to report both myself and the piggy are doing much better now. She has fully recovered and I am as recovered as I can be. No more infection and 02 levels are back to normal 97+.
I would have normally taken the rapamycin on Friday but I wanted to stop taking it until the infection cleared. It does lower the immune system and better to play it safe. A few things I noticed:
The muscle tightness/pulling sensation came back Friday night. By Saturday I was back to feeling like my muscles were being stretched/slowly ripped off the bone and my bi lateral plantar fasciitis came back. I have other random pain in the squishy parts of my feet that usually flares with the plantar fasciitis too. I have no idea what causes this. It is present 50-75% of the time. More so in winter/change of seasons.
Let's hope this goes away again.
I have several types of muscle pain and I am pretty sure a lot of my muscle pain is actually nerve pain (and possible myopathy-likely both). This pain can only be described as : the kind of muscle pain you get with the worst flu you've ever had after running a marathon and someone slowly pouring acid on your muscles and joints.
This is the pain I am in 24/7
Nothing but pain medication makes a dent in this pain-though cannabis sometimes can help slightly ( I am given no pain medications )and the last round of rapamycin had no effect on it.
I also noticed a slight increase in joint pain. Not sure if this is related to the new medication. It could also have been a sickness/infection response as I was sick for probably longer than I realized. Since I always feel like I have the worst flu ever and suffer from allergies all year long it's often I don't get the same body signals most people get that I am "coming down with something" because I am essentially always sick. I have body temp regulation issues to and often miss fevers the first few days.
Fun fact: when I am in a severe PEM crash my body temp goes down to borderline hypothermic levels . My "normal" body temp is cooler than most people at about 96.8-97 (this seems very common in ME/CFS folks as well as fibro/LC ). When I crash it goes down to 95 even in the summer. I have no idea why and no doctor has ever been interested/investigated this. It's like a reverse fever.I am not the only one who reports a decrease in body temp during severe crashes. I do not always check my temp during crashes but when I do it's usually lower than normal. Must be psychosomatic body temp regulation/sarcasm.
All this said between the disruptions /house repairs and being sick with an infection I am very wiped out. I will try to update in a few days how things are going. I am just so damn tired my bones hurt(more than usual).
......
Another quick update I switch to an extended release nattokinase (it supposedly doesn't activate until it hits the intestines) and have noticed an improvement in my POTS symptoms .Yesterday I was able to stand and talk for 5-10 minutes without my heart going above 95. Maybe it's helping...?
Gotta celebrate the small victories :)