HIPAA regulation is not consumer centric (e.g., type of disclosure, purpose of disclosure, time limited disclosure) and does not include regulation specific to the management of health data sharing preferences

Information privacy is a key component to health care quality and is necessary for meeting the Institute of Medicine’s (IOM) triple aim for health care (Berwick, 2009; Peel, 2007). If confidentiality and

I have long believed in patient centered care. This is the paradigm from which I delivered nursing care and the horizon on which I base my expectations for care and treatment as a receiver of care in the

Health data provide significant insights to providers, consumers, and policy makers as data are transformed into usable information for treatment, evaluation of quality, and costs of care (Green et al.,

Data are an asset and a public good (McGinnis, Olsen, & Goodby, 2010). Health data (e.g., clinical, claims, and administrative) hold the potential to transform the health care industry into a learning

Health care data is private. But is it used for many purposes that may not make it confidential. Take health care activities like population health - a part of health care reform. Population health requires

My research using a nationally representative data set showed that consumers are more concerned about the security of their health data, and less concerned about privacy. The difference seems to be that

1000 Ways Health Care Uses Your Protected Health Information (PHI). PHI is the data that doctors and health care staff collect about you when you access the health care system. PHI is the data that determines

Cryptocurrencies and Blockchain technologies offer health care consumers a tracking and auditing mechanism. Allowing for the monitoring of when, how and for what purpose their health care data is being

It's my first week on Steemit! Follow-me and my blog on health data sharing preference of consumers. Learn why consumer preferences for health data exchange are important.

Today, your care is documented electronically in a health care information system. That information, if structured, resides in a database and is available for other secondary purposes. You may think that

My name is Lisa, I am a researcher and applied data scientist. Joining to become more educated! Health care is still moving to digitized data environments. When your health care data is aggregated, it