A 13-year-old British boy suffers from a rare disease that affects one person out of 7 billion people, making him look like a young child and always acts like him.
Doctors discovered that Angus, who had stopped growing at the age of three, had a chromosomal disorder or "chromosomal abnormalities" by chance, when they were doing routine tests on newborns. He now has 250 doses of medication a week.
Because of this chromosomal disorder, Angus will remain a child for the rest of his life. Unfortunately, doctors do not have records of other people with the same condition. There are a few children with similar conditions, but they are not identical, because Angus is the only child infected with the disease.
His mother Tandy estimates the number of surgeries her son underwent in more than 40 operations during his short life, including regular injections with Botox to prevent staining. Despite the difficult confrontation with the people staring at him in the street, Angus's mother is determined to make him live as normal a life as possible.
Angus regularly attends the local cricket club to encourage his 15-year-old older brother, Otis, who stands with his six-foot-tall body while demonstrating to his younger brother.
"Angus wears children's clothes that are 10 years his junior," says the 48-year-old mother. It's like dealing with a young child before he learns to walk. " She does not lack motor skills, but he is speechless, so he invented his own version of sign language. For example, if he is happy, he raises my thumb and forefinger and shakes them together.
Although it may seem encouraging, his mother says Angus was born with several small holes in his heart and a disease called congenital spine abnormalities, which means that some of his vertebrae are not fully formed.
"He was also born with a congenital deformity in his feet (called the warp of the feet) and chronic gastroesophageal reflux, so he has been suffering from a huge number of health problems from the start."
