Day in day out story of my unusual life which is not easy at all.
On my (let’s say) blog I will try to bring You some news from my routine.
My name is Jacob. I’m 18. I’ve been cursed with my disease Spinal Muscular Atrophy. Last year had given a small light in the narrow tunnel. Spinraza has been approved to use for all types of SMA. Unfortunately we hadn’t expected that it’ll cost 1 million $. I will appreciate your support. :)