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Dad Against Duchenne
@d-a-d
60
In 2022 my son was diagnosed with Duchenne muscular dystrophy and now, person by person, I'm raising awareness about it.
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Adelaide
Created
2023-09-20 06:25
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Wallet
d-a-d
Reflections
2y
The Eye of the Beholder
... in it's most used context, funny does tend to sit with the people watching, but now I wonder where the truth lies.
$ 4.300
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d-a-d
FreeCompliments
3y
The Invisibility from Disability
In a similar philosophy to ownership, perhaps being aware is nine-tenths of the issue. Is awareness all that's needed?
$ 5.923
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d-a-d
FreeCompliments
3y
Good Grief - Learning About The Stages of Grief
Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages of grief. In my experience, I didn’t track how
d-a-d
FreeCompliments
3y
Good Grief - An Introduction
I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has ever experienced it in its truest form. I
d-a-d
FreeCompliments
3y
Life's Crucible
She's learning heartache and sadness, but she's also learning empathy and how to genuinely care.
d-a-d
FreeCompliments
3y
10,372 - Part Three
This is the third post in this series, please read the first two posts before continuing. You can find Part One here: 10,372 - Part One, and Part Two here: 10,372 - Part Two. We departed the doctor's office
d-a-d
FreeCompliments
3y
10, 372 - Part Two
This is the second post in this series, please read the first post before continuing. You can find it here: 10,372 - Part One. Our frustrations continued to mount at not being able to nail down what was
d-a-d
FreeCompliments
3y
10,372 - Part One
I wrote a post a short time ago titled What is DMD in which I explained, as best I could, a little about the DMD diagnosis process and what it's like living with DMD. In that post, I did inject a little
d-a-d
Education
3y
What is DMD?
This may not be a traditional education post, however, it is educational in nature, so I hope it's okay to put it in this community. In fact, I hope that this post will educate anyone who reads it on a
d-a-d
introduceyourself
3y
A Dad Will Do Anything - My Introduction
Hi everyone, my name is Steve, but here I'll refer to myself as d-a-d, which is an acronym for Dad Against Duchenne. Eighteen months ago my son was diagnosed with a rare neuromuscular condition called
