Image created using ideogram
I have some good news to report. After 2 months of fighting with my insurance , I finally have the medication my dr ordered. I've been on it about two weeks. it takes a few months to fully kick in but I am feeling just a touch better.
I also talked to my dr after exhausting every palliative care provider in the area, and having no luck he agreed to give me a tiny amount of pain medicine.
The absolute lowest dose and only two a day (this medicine should be taken every 4-6 hours) It's better than nothing but not quite enough. I'm pretty sure I got more as a kid when I had to get dental work. but it's a start
My dr recognized my pain as well as the difficulty of me getting to a pain management dr- monthly in person visits, random same day drug tests, and other factors make that impossible for me.
It should not be this hard to get pain care but it is. Especially for women. The same practice the NP that works there gave my husband max dose of pain meds every month for years, no questions asked (until he decided to go somewhere else for that). I am in objectively more pain and after years of battle.... I get a children's dose worth.
..........
Some not so good news...I have a squishy lump right where the (not cancerous)tumor was removed. It doesn't feel as hard as the tumor . I could be fluid build up. I need to get an MRI to see what's going on. Luckily the kind of tumor I had is very easily seen on MRIs. It's highly unlikely the tumor is back after only a few months, these tumors grow slowly.
I am also having a spot on my ankle checked again . I may have a rupture. We warned the insurance company about the delays in getting me meds. In the two months it took something happened and my pain and swelling got more severe. The new meds will stop, or at least slow down the damage.
I am likely looking at two or three more surgeries in the future. Surgeries that could have been avoided if it didn't take literal decades for a diagnosis because doctors do not believe women's symptoms, even with positive findings. I have permanent damage.