Ya it's well controlled now thankfully, similar to yourself, infusions every 6 weeks.

Good to hear. I have mine this week - do you get a handful of days of tiredness, headaches and thinking issues after?

I tried the specific carbohydrate diet which was a book I was recommended and it worked well, but found it unsustainable long term, as you want to live too..

"Life without bread" ?

It worked for me, but the carb level I needed was so low, I couldn't maintain it either. But, it did give me the chance to improve it and then control it better. I gave that book to a few people over the last two decades with milder symptoms, and after a couple months of low carb, they could introduce again and it was okay. I think in my case, too much damage has been done for too long.

The steroids almost killed me. It gave me pancreatitis 6 times in a year and on top of that, it was eating through my hipbones due to the high dosage I was given.

I never thought I would make it this far in life. :D