Hi... 🙂

Around 9.00 to 10.00 am every morning, the medication will be disconnected from his CVL. This is his chance to look outside the room, or he called it the prison. Most of the time, he will cry, he says he wanted to go home. He wants to be treated at home, although he knows what the truth is.

"Papa, which direction is home? and why is this window locked really tight?? I just wanted to breathe fresh air. Can I ? Can you open it?"

"Papa, I want to drink Pepsi, I want pizza. Let's go out now."

It seems that there are no nights or days because the feelings are not much different. Most of the time, he wanted the curtain to be closed, even the light in the room switched off. He got light sensitivity or photophobia. We don't know how long it takes for us to be tested in this difficulty. Problem after problem occurs. Every time a new problem appears, the risks and difficulty also rise to a whole new level. We only hope for a miracle to happen. We are stronger now. We can win this.

That's all for today. Thank you for the upvotes. Stay safe, and love your family.
Bye 😉