Apologies if this has already been mentioned - no time to read all the comments! But do you suffer from a lot of stress? Even if you think you don't, you may. It's called hidden stress. My partner is a counseller / psychotherapist and spends a lot of time reading research done by Gabor Mate, a very well respected psychologist who has done some ground breaking research on stress. He has a book called "When the Body says No, the cost of hidden stress", among many others. The book is essentially about the mind-body connection exploring the connection in conditions and diseases such as arthritis, cancer, diabetes, heart disease, IBS, and multiple sclerosis. I have watched a lot of interviews / lectures by him and he is truly an inspiration. Check him out on Youtube to get an idea of what I'm talking about. Your condition may be related so it could be worth exploring.