Thanks for sharing.

I don't feel a need to research what you say independently, I trust what you're saying is true.

You have a good technical grasp on your condition. What you describe sounds hellish, all I can do is wish you well.

Only look at the contents of the link if you yourself are interested. It's literally just a landing page for a state government enquiry.

Youe life sounds dominated by the hardship you face. It would be harrowing. Do you experience small joys at times in there? I feel like I'm trying to change the subject and I suppose I am, but I'm interested