After a charity fundraising meeting for Yegor Kudryavsky @dubishin/blagodiyna-zustrich-zbir-koshtiv-for-yogorchik, he decided to write posts about people with SMA.
To begin with, let's consider what SMA is. SMA (Spinal Muscular Atrophy) is a genetic disease. You can learn about this here https://en.m.wikipedia.org/wiki/Spinal_muscular_atrophy, and about the types of SMA here https://treat-nmd.org/treat-nmd-diseases/spinal-muscular-atrophy/. If we speak the vernacular, then the SMA is atrophy and weakening of the child's muscles, curvature of the spine, shortness of breath and eating, pain, weak immune system to lung disease and more. This is not to mention the auxiliary devices for the child's life (ventilation, saliva ejector). All these detections can be in separate types of SMA.
When parents are faced with this disease or other form of disability, there comes a moment of panic. Doctors also intensify panic moments. Instead of supporting their families and helping their parents, they act as psychologists and gardeners. These "white robes" of Hippocrates sow the seeds of fear, conscience and helplessness. The most important aspect of medical "agriculture": prepare for the death of your own child and do not fight for his life.
Of course, there are parents who go against the doctors' predictions. But unfortunately there are those in whom the "grain" of fear grows and begins to bear "fruit":
