Lupus: Creciendo Juntos// Lupus: Growing Together
Reconstruyendo mi vida con el lupus en ella/ Rebuilding my life with lupus in it
Hello my hivelovers, grateful that you are there, in this post I want to continue telling my story with the lupus in my life; and how I developed part of my early adulthood with its presence next to me.
Once I assimilated my condition as a lupus patient and already documented with information about it, I learned that one of the keys to dealing with these diseases is to know them. I was able to understand that lupus is a psychosomatic disease, the one where our body becomes emotionally ill and causes physiological symptoms to develop.
Lupus can be triggered by a high emotional charge present in the individual, mine was the stress of a college graduation, coupled with intense family problems, for which I even left home at that time and the attempt to adapt in a new and unfamiliar city, away from friends, loves and family.
Already diagnosed as I told you in the past post: Lupus in my life: the beginning; I started to rebuild my life and move on because you can live with lupus, always having the proper care and medical checkups, moreover I managed to have a decade of life in my 20s and 30s where I enjoy like any girl full of encouragement and desire. I have never missed a medical check-up, I try to document myself but not to obsess and I try to do everything within my body's means.
Thus, at the age of 25 I found a crossroads where I wanted to live as quickly as possible the experiences for fear of not knowing until when my body would let me do it, thus, my need to form my own family begins to become latent, because my professional performance had already achieved it.
At that age I had my daughter Alejandra, against all opposition and family fears, but I prepared myself, investigated, carried out the necessary tests and controls and I succeeded. I was fortunate to have healthy kidneys because if there is any damage to them, pregnancy is contraindicated in lupus patients; I also had antibody tests done because there are specific ones that can cause abortions and I did not have them. That is why, with the medical consent, I was able to take the risk.
Mi hija Recién Nacida/ My newborn daughter
Alejandra was born at 34 weeks and she also fought, managing to go home with me in one week; I was fine, enjoying motherhood until 2 years later when lupus took its toll in a pretty hard way: a cellulitis in my body caused an infection to my brain, I was 21 days in intensive care and two more weeks in the hospital, where they performed a tracheotomy to help me breathe. I did not go out with a tracheostome because that same night my body evolved in such a way that I expelled it and breathed on my own
I went home with a lot of fear, and even more so when I have to say that there are 15 days of my life of which I remember nothing but what I am told. It is not easy to face the vulnerability of life that we have, and also as a result of being left with a cough after the intubation, after 15 days I had a panic attack and again I had to be intubated, other days without knowing about me. It may seem incredible or miraculous, but with another tracheostome in place the same thing happened and I went home standing up, breathing on my own and without any apparatus in my body.
It's hard to get out, to face the world after all that, you're afraid to live but also to die, you experience so many emotions at the same time that it's hard to handle them and of course the lupus is still there. A year and a half later I could feel myself again and I continued with more strength, experience and desire because I am not immortal, nor do I have more lives than a cat, but I am sure that what I do have is a great mission that I prepare myself for every day.
At that time my faith grew and I was able to continue to watch my daughter grow without missing her moments. Today she is 15 years old and she can still have me here. Later on I divorced my husband at that time, to whom I must thank for his support and dedication in those critical moments, we continue to be friends.
Mi hija ya adolescente/ My daughter, already a teenager.
None of that stopped me from going on, fighting, living with lupus but not letting it dim my light and my beautiful, happy moments. Years later I met my current husband and I even have another child, but I tell you that story in the last post of my life lesson, soon
Con mis dos hijos/ With my two children
I hope you've seen that sometimes we drown in a glass of water and think we can't get out, but I guarantee that there are people out there with extraordinary stories of struggle, of love, of bravery and courage to live.
See you soon and I invite you to leave me your comment, with love. Remember to share it with someone else who may have some condition preferably to visualize that you can.