RE: Still feeling a bit better

There are a couple of mobile infusion companies around here. They market themselves for people with hangovers etc but they come to your house and give you an infusion cocktail. The problem is I would need these weekly and my veins suck. Insurance also does not cover this and it's pricey.

Half the time people can't get a needle in me no matter where I go or who is doing it. I've been told my blood is thick from people who draw my blood for labs. I also have elevated platelets, hemoglobin and leukocytes . Still can't get a doctor to test for "sticky blood" which is common in ME as ME patients often have lots of vascular issues.

Off topic but I have a strange medical question for you to ponder (if you want Don't feel obligated)

Brain freeze/ice cream headaches

I remember getting these occasionally as a kid. But when I hit my teen years , a few years after I got sick I started getting them in my spine. It is the same exact sensation only more intense and lasts longer. It's always right between my shoulder blades. I do not get the headaches anymore.

I also can't drink anything really cold when it's warm out or it will trigger. I did look it up online and others report this but it seems rare-ish. I cant find any explanation as to why this happens.

Is it a temperature regulation thing? My body can't regulate temperature well at all. I am often too cold or to hot . Sometimes strangely both (like breaking a fever only it happens like all the time) Dysautonomia os a bitch

Any thought on this?

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