Hello, I am Remenzer. I come from Sabah. I hope I can tell what we've been through before, now, and next.
I am sorry if you saw a lot of English grammar mistake. I am Dusun people, and I am rarely using English in communication.
This is me, Remenzer
This is Ray Einstein with grandpa, my father.
I miss Ray's healthy condition just like in the picture.
On 30/10/2020, Ray's mouth looks pale, and what makes it weirder was his leg and hand got few bruises that already two weeks and doesn't heal much. So, we went to the nearest clinic in the next village to do a blood test. It shocks me, his red blood count was 7.0. So we rushed to the hospital in town. The RBC dropped to 6.8. The doctor said we need to go to the hospital in the capital.
After getting our covid swab test result (negative), we were sent by the ambulance to the hospital in the capital.
Inside the ambulance
We reached the hospital at midnight. We were put in a filter room. All patient that come from all over the places in the state must be put in the filter room before moved to the normal wad. We must have 3 negative covid swab test result before moving to normal wad.
We spent 10 days in there, if I am not mistaken, and we've been through 6 swabs test. I had to say, it was the most terrifying days of my life. I can walk alone into the jungle at night without fear but this I am so scare. Why I say so, two of the patient there detected positive covid, and one of it, sorry to say this, die because of short breath. I am so scare that the virus might got us because we're in the same room. Thank goodness, after the 6th test result out, we get negative results and moved to the normal wad room.
One day after we moved to the better ward, my son had to go through cerebrospinal fluid drawn procedure.
This is before entering surgical boards.
I have never cried before in my entire adult life, but this made me crying. He is so brave.
After CFD, waiting for him to wake up.
This is where the CFD.
After the CFD result out, my son diagnosed having aplastic anemia. It crush my heart. I felt numb and weak. The doctor said, bone marrow transplant is the only better way to cure him.
I felt under so much depression. I felt strengthless. We google about AA and read about it together. I am scare. Ray is scare. We all scare. Not to mention the cost of BMT. Ray give me suggestion and wish me to have a youtube channel, because he know how good it turn if it success. I don't know what to do with that channel. I am so bad at it. But Ray happy about it, and fell secure. I granted his wish about the channel under my name, at least he see me doing something and happy about it.
For the BMT, both of his younger brother already do a HLA typing. The result already out on 14/01/2021. His youngest brother, 5 years old, Rez Einzer has the highest % match. We happy and sad at the same time. We are waiting for the next appointment in the capital hospital on 25/01/2021.
This is Rez
While waiting for the next appointment, on 25/01/2021, Ray need irradiated blood and platalet transfusion every week.
Irradiated red blood transfusion
This is one of the weekly full blood test result
This is Ray's diary, the doctor do the writing of his current status here.
It break my heart everytime I see this. Ray insist to study in his current condition. Ray is studying in the hospital wad.
I cut my hair bald. I felt like I had to. I make a promise to myself, I will never grow this hair longer, not until Ray has fully cured. Btw, this is my daughter, Rein Eiona.
Help me, Pray for my son, Ray.