Today I am home. Its 10:30 pm. They are going easy on me by giving me a day off.
I don’t or let me just say I lost track of time.
I went into the hospitol on the 21st. Discharged on the 26th. With 10 more radiation apointments. We did 5 radiation treaments while in the hospitol.. we have 10 more to go.
They had me going 24 hrs a day . Then hard cord steroids . We had to stop the cancer from hitting ad destroying the nerves. They thought I had a stroke. Whole right side was gone. Made no sense to them. Good thing I went through my oncologist he was on top of things. He diverted me to that hospital because they had Radiation cancer treatment. Until the tumor came bach on the ER CT . The ER doctors hole attitude changed along with his deminer . My oncologist also called and had contacted them.
Overall they did a good job in the release / discharge. Its not normal the things that have to be done. Don’t forget we also did a radiation treatment this morning.
So you are discharging me with everyday apointments as an outpatient. I am going to the VA for further treatment plus the other contracted healthcare centers. Through in the holiday and it can compliment everything.
By law they have to give me or provide all the prescription. The steroids and the rendition treatment are causing massive nerve system, well the cancer is and we have to take out the tumors. The big item is the Insulin and everything that goes with it. .
Nobody is going to give you a box of needles. Insulin and everything to monitor and control diabetes. No record of classes. There is no liability there.
Let’s not get that deep with the steroids.
They came back up to my room and ask me if i could pay the pharmacy $418.00 copays. Hahaha . All that needs to be done is for them to call the VA and tell them were returning him and he needs the following meds. I will check i at the ER and they will discharge me with follow up apointments and were done.
Tomorrow , well today cause its now 6:07 am 27 May. . Now thats funny. I will spend the day relaxing. No treatments. But the 28th here we go. Big long day. Build up some strenth. We have a good 16 day fight ahead.
Ok lets talk
This is hard and divesting on the family . They want you here. I get better support at the hospital and can allow them to take control . Here at home not so much. Your talking food, all the therapy ‘s ,meds and keeping track. Vitals, on and on. You have to make a choice. Its all a balancing act. Communication is the key. Respect all options. And most of all don’t be the bully, everyone is invested. They need to be supported just like you. Its not all about you. That is the way I look at it.
I have been in this fight for 9 months. That’s a long time. It will get longer. 11 months and we are blazing a new path.
The estimated life and expectation are there with research. You have to be accurate and it takes time. I researched this in detailed in the beginning. I was in horror and when I asked question to the oncologist they confirmed what I discovered. You will look it all up, just like I did. Then I wanted to know how to destroy it and live past it.
Be greatful for everyday. Not with words , but live it.
Its 7am everyone is sleeping. I am an hour late on all pills. Hehehe. We will let them sleep and adjust what needs to happens. I have learnt years ago how to adapt , improvise and overcome.
Have a great day today. Its a day of celebration. We honor our fallen by celebrating their life’s and who they are.
Wolfhart